advocacy
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Social media users ask, “Where is Mandy?” as CDC director stays out of spotlight during Covid surge
Despite what might be the second biggest surge of the entire pandemic, CDC director Mandy Cohen has been absent from her official CDC social media accounts. Similarly, the CDC has yet to issue any press releases or public service announcements specifically about the JN.1 surge, which may be infecting over one million Americans each day…
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Long Covid advocates face challenges, potential discrimination with billboard campaigns
People with Long Covid in the U.S., Canada, U.K., and Europe are buying billboard ads to raise awareness about the disease and promote the urgent need for clinical trials. These billboards aim to do the job of public health authorities, advocates who spoke to The Sick Times explained. However, as some billboard efforts in the…
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What’s happening this week, January 9
A new study in Nature Communications confirms what so many people with post-exertional malaise (PEM) have been saying for decades: exercise can make us worse. Plus: research about Paxlovid and returning to work, an upcoming march in DC, an important NIH webinar.
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What’s happening this week, January 2
Research and advocacy updates for the week of January 2 include new research about a drug candidate for Long Covid and ME, markers of brain injury, Paxlovid, and a Twitter campaign.
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Long Covid advocates send “unhappy holiday” cards to their representatives
This month, the organizers of Long Covid Moonshot put together an “Unhappy Holidays” card, letter, and calling campaign directed at legislators. Some from the international community joined in too, writing cards to their respective governments. The creative effort featured colorful, funny, and heartbreaking letters from people with Long Covid and their allies to advocate for…
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#MEAction co-founder Beth Mazur passes away
On Friday, the ME advocacy group #MEAction shared that their co-founder, Beth Mazur, passed away after living with myalgic encephalomyelitis (ME) for 15 years. “She was a selfless beacon of hope and light for so many in our community and she demonstrated an unwavering commitment to the cause,” #MEAction wrote on their website.
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Policy experts, scientists, disability groups urge Biden to address the Long Covid crisis
A wide breadth of policy experts, scientists, and disability groups are calling on President Biden to urgently address the Long Covid crisis with annual funding in the billions. In the open letter published on Monday, health policy experts, leading Long Covid researchers, clinicians, journalists, chronic illness and health advocacy groups, and many others demand that…
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HIV may increase the risk of Long Covid. Why aren’t major advocacy groups addressing it?
Advocates say that the government is not doing enough to support people with Long Covid, nor are most well-funded LGBTQ+ or HIV advocacy groups, even though Long Covid may be burdensome for their communities. Recent studies suggest that HIV may be an increasedrisk factor for Long Covid and that people with HIV have an elevated…
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