clinical trials
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Research updates, April 1
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Still Here, March 29: Links and transcript
Co-hosts Miles Griffis and Betsy Ladyzhets recap their reporting about the closure of the Office of Long COVID. And Christina Igaraividez reads part of her Color of Long COVID essay about a transformative friendship.
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RECOVER grants for Long COVID pathobiology research are among those cut under new NIH directive
Some grants for Long COVID pathobiology research in the National Institutes of Health’s RECOVER program are among those rescinded by the federal government this week under a new order to cut all funding for COVID-related research. Up to 45 grants awarded in 2022 and 2023 may have been revoked, as well as more recent grants…
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Still Here, March 22: Links and transcript
In this episode: Freelance reporter Rishabh Jain on Long COVID in India. And The Sick Times’ engagement editor Heather Hogan on claiming Long COVID identity.
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Research updates, March 18
Last week, researchers met for the Conference for Retroviruses and Opportunistic Infections (CROI) in San Francisco, California. While the conference focuses on HIV and related diseases, it has included research on Long COVID and COVID-19 in recent years due to their impacts on people with HIV. This year, there were at least 24 papers that…
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Still Here, March 15: Links and transcript
In this episode: Co-host Miles Griffis reflects on five years of having Long COVID and the multitude of organizing, advocacy and research efforts led by people with Long COVID since the pandemic began.
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Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases.
Since falling ill with myalgic encephalomyelitis (ME) in 2018, it has frustrated me greatly seeing organizations and especially governments repeating out-of-date statistics related to this disease — minimizing either the apparent number of sufferers (such as the much-repeated 250,000 figure for the number of ME patients in the UK) or our degree of suffering.
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Still Here, March 9: Links and transcript
In this episode: Co-host Betsy Ladyzhets shares the experiences of federal government workers living with Long COVID. And more information about The Sick Times’ first in-person (and virtual) event.
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Research updates, March 4
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Still Here, February 28: Links and transcript
In this episode: Trump’s executive order to sunset a Department of Health and Human Services Long COVID advisory committee and being a “Long COVID unicorn.”
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