
Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill Cassidy (R-L.A.), who chairs the HELP Committee, asked about federal health agencies’ commitment to addressing Long COVID in his first question to the Secretary.

Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative.

Some grants for Long COVID pathobiology research in the National Institutes of Health’s RECOVER program are among those rescinded by the federal government this week under a new order to cut all funding for COVID-related research. Up to 45 grants awarded in 2022 and 2023 may have been revoked, as well as more recent grants…

As scientists across the country face confusion and uncertainty following drastic changes at the National Institutes of Health (NIH) under President Donald Trump, the agency’s flagship Long COVID research program is continuing its existing work as usual. But future studies could be delayed or interrupted and prospects for additional funding are unclear under Trump’s leadership.

The U.S. government has stopped updating some of its public COVID-19 data, as part of a “pause” to public federal health communications under President Donald Trump. While federal officials have not formally announced any details, the Centers for Disease Control and Prevention (CDC) has missed scheduled updates to some infectious disease dashboards this week. A…

The U.S. National Institutes of Health (NIH) has announced further funding for its flagship Long COVID research program, called RECOVER, as well as new details about the program’s budget through 2029. RECOVER will receive an additional $147 million, building on $515 million allocated earlier this year and the original $1.15 billion funded by Congress in…

As incoming President Donald Trump has announced a growing list of top nominees who’ve denied science and public health, people with Long COVID are preparing for an administration likely to be less friendly for research and advocacy. Along with Trump in power, Republican majorities in the House and Senate may lead to reduced funding for…


This episode honors Tinu Abayomi-Paul, who was “so funny … and so clever” and “wonderful at supporting disabled people in a beautiful and authentic way.” Also, this week’s COVID forecast and an update on CURE ID.

Summary In the pilot episode of Still Here: A Podcast From The Sick Times, co-hosts Miles Griffis and Betsy Ladyzhets talk with podcast producer James Salanga about the latest COVID-19 numbers. Engagement editor Heather Hogan joins James, Miles, and Betsy to recap the NIH RECOVER-TLC meeting from last week. And in research, a hopeful update…
advocacy arts CDC clinical trials commentary COVID-19 precautions disability essay government policy H5N1 healthcare HHS influenza international Long COVID in children masks and respirators ME ME/CFS medical education national COVID-19 trends NIH NIH RECOVER podcast public health research update science Trump administration updates and events vaccines wastewater surveillance