NIH

Q&A: NIH Director Dr. Monica Bertagnolli on next steps for RECOVER, future Long Covid research plans, and more

Policy & Advocacy, Science

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By

Betsy Ladyzhets

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August 13, 2024

Betsy Ladyzhets spoke with Dr. Monica Bertagnolli, director of the National Institutes of Health (NIH), in a wide-ranging interview discussing the agency’s efforts to further research into Long Covid and related diseases. In the interview, Bertagnolli described a new phase of RECOVER, called Treating Long Covid, which responds to the Long Covid community’s criticism with…
Sen. Bernie Sanders introduces $10 billion Long Covid Moonshot legislation to support research, healthcare, education

Policy & Advocacy

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By

Betsy Ladyzhets

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August 6, 2024

Last week, Sen. Bernie Sanders introduced the Long Covid Research Moonshot Act of 2024. The bill allocates $1 billion in federal funding per year for the next 10 years for Long Covid research, treatments, public health education, and expanded healthcare. A draft version of the Act received thousands of comments from the Long Covid community…
New NASEM reports offer broad definition, highlight the seriousness of Long Covid

Policy & Advocacy, Science

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By

Betsy Ladyzhets

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June 18, 2024

The field of Long Covid research reached a major milestone last week with the release of a new report from the National Academies of Sciences, Engineering, and Medicine (NASEM) outlining a working definition of the disease.
‘They bungled it:’ NIH documents reveal how $1.6 billion Long Covid initiative has failed so far to meet its goals

Investigations, Policy & Advocacy, Science

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By

Betsy Ladyzhets

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May 31, 2024

In February 2021, the National Institutes of Health launched a new $1 billion initiative to study Long Covid, a chronic disease that has changed the lives of millions of Americans. Three years later, the NIH initiative, called RECOVER, has not met these goals, according to a detailed review of budget and planning documents obtained through…
Long Covid advocates call out Biden, ask for $1.2 billion of 2025 NIH budget

Policy & Advocacy

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By

sick times

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May 28, 2024

Last week, a delegation organized by the grassroots advocacy group the Long Covid Campaign traveled to Washington D.C., asking Senate leaders to accelerate over a billion dollars in funding for Long Covid research with the Biden administration’s fiscal year 2025 budget for the National Institutes of Health (NIH). The advocates made themselves known in the…
Sen. Bernie Sanders seeks feedback on $10 billion “moonshot” for Long Covid

Policy & Advocacy

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By

Miles W. Griffis

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April 16, 2024

Last week, Senator Bernie Sanders proposed a “moonshot” for Long Covid, which would allocate one billion dollars a year for the next 10 years to mandatory research into the disease. The Senator and the United Senate Committee on Health, Education, Labor, and Pensions (HELP) are currently seeking email feedback on a draft of this legislation,…
Research updates, April 2

Science

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By

Miles W. Griffis

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April 2, 2024

Research updates for the week of April 2 include a new NIH study about Havana Syndrome that parallels the agency’s recent ME paper, a Covid-19 antibody that may cause some Long Covid symptoms, and an upcoming clinical trial.
Errors, omissions, potential bias: Why some ME experts are calling for a retraction of the NIH intramural study

Investigations, Science

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By

sick times

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March 19, 2024

After NIH’s intramural ME study was published last month in the journal Nature Communications, some patient-advocates and experts in the ME community say their worst fears about this $8 million, eight-year research project were realized. In interviews with The Sick Times, advocates and experts shared concerns about which patients were included in the research, the…