Policy & Advocacy
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Now offline: Government resources about Long COVID as a disability
Several government resources about accommodations for people with Long COVID have become unavailable in the last week, following purges of government websites and datasets under the Trump administration. These pages offered crucial information about rights under the Americans with Disabilities Act (ADA) for people with Long COVID and their employers.
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Breaking: Vital Long COVID data taken down following Trump order
A key source of U.S. Long COVID data is now offline following a purge of information related to sexual orientation and gender identity ordered by President Donald Trump’s administration. The Household Pulse Survey, a data collection effort by the U.S. Census and Centers for Disease Control and Prevention (CDC), is among many CDC datasets and…
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RECOVER hasn’t been impacted by Trump freezes so far, sources say. But the program’s future is still uncertain.
As scientists across the country face confusion and uncertainty following drastic changes at the National Institutes of Health (NIH) under President Donald Trump, the agency’s flagship Long COVID research program is continuing its existing work as usual. But future studies could be delayed or interrupted and prospects for additional funding are unclear under Trump’s leadership.
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Some U.S. COVID-19 data are down amid “pause” to federal health communications
The U.S. government has stopped updating some of its public COVID-19 data, as part of a “pause” to public federal health communications under President Donald Trump. While federal officials have not formally announced any details, the Centers for Disease Control and Prevention (CDC) has missed scheduled updates to some infectious disease dashboards this week. A…
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Long COVID is a smoldering threat to wildland firefighters
Editor’s note: This story was originally published in October 2022 by High Country News and was supported by The Economic Hardship Reporting Project. Researchers found that particulate matter from wildfires can increase risk of COVID-19 and that wildland firefighters may be at a higher risk of developing Long COVID due to a variety of factors.…
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Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels
Lymphopenia is a health condition in which people have low white blood cell count in their blood. Without these cells, the body is unable to defend itself effectively against pathogens. Lymphopenia is one type of way your body can be immunocompromised; it can be caused by many things, including infections, inherited conditions, autoimmune disorders, and…
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COVID-19 advocates are distributing masks to protect Californians from wildfire smoke
As the skies of Los Angeles filled with smoke this week from multiple raging wildfires, many residents quickly recognized failures in local and state governments’ ability to protect them from hazardous air pollution. Community members from local COVID-19 advocacy and mutual aid groups stepped in to fill this gap, providing stockpiled respirators and information about…
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How America lost control of the bird flu, setting the stage for another pandemic
Nearly a year into the first outbreak of the bird flu among cattle, the virus shows no sign of slowing. The U.S. government failed to eliminate the virus on dairy farms when it was confined to a handful of states, by quickly identifying infected cows and taking measures to keep their infections from spreading. Now…
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Dr. Gemma Carey, Australian public health scholar and Long COVID advocate, dies at 43
Dr. Gemma Carey, an Australian academic, author, Long COVID advocate, and disability rights activist from Canberra, passed away on November 24, 2024, at the age of 43. Her work in public health, disability rights, and social justice had a profound impact on the communities she served, particularly those marginalized by conventional healthcare systems.
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California Governor Gavin Newsom declares state of emergency for bird flu
California Governor Gavin Newsom declares State of Emergency for bird flu Earlier today, Governor Gavin Newsom proclaimed a State of Emergency in California in response to prepare for the potential threat of bird flu, also known as Avian influenza A (H5N1). The Governor’s office said the emergency declaration will help state and local agencies better…
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